At 3 months old, Quinnlyn had her first appointment with Dr. Comi, who directs the Institute’s Hunter Nelson Sturge-Weber Syndrome Center. She confirmed Quinnlyn’s Sturge-Weber diagnosis and the likelihood of seizures starting within a couple of years. She also confirmed that the low dose of aspirin recommended by our neurologist, combined with anti-seizure medications, could help keep seizures from starting. Dr. Comi helped us understand Quinnlyn’s diagnosis and how to care for her, and that, with the right treatment, she’d be okay. She was the best person we could have found to treat our daughter’s Sturge-Weber syndrome — it’s her life’s work and she and her research team pioneered this treatment. We’re so thankful for Kennedy Krieger and Dr. Comi. - Chrissy and Doug, Quinnlyn’s parents